Project Administration and Management


The project is led by Prof. Mike Makris from the University of Sheffield, and is managed by a Steering Committee which includes representatives from the European Haemophilia Consortium, Medical Data Solutions and Services, University Medical Centre Utrecht, and four participating haemophilia centres. 


Project Leader

Prof. Mike Makris
Project Manager        

Dr. Estelle Gilman




University of Sheffield
European Haemophilia Consortium
European Association for Haemophilia and Allied Disorders
University Medical Centre Utrecht


Steering Committee


Prof. Mike Makris (University of Sheffield)
Mr. Radoslaw Kaczmarek (European Haemophilia Consortium)
Dr. Kathelijn Fischer (University Medical Centre Utrecht)
Dr. Alexander Gatt (Mater Dei Hospital, Malta)
Dr. Robert Hollingsworth (Medical Data Solutions and Services, Manchester)
Dr. Thierry Lambert (Paris AP-HP Haemophilia Treatment Centre)
Prof. Riitta Lassila (Helsinki University Central Hospital)
Prof. Flora Peyvandi (Fondazione IRCCS Ca’ Granda Ospedale Maggiore Policlinico, Milan)




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